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Locations

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ESG Roadmap

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Family Camp Helps Create Community, Support Networks for People with PKU

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G. Eric Davis

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C. Greg Guyer

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Marni Kottle

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Brian R. Mueller

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Amy Wireman

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Alexander Hardy

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Elizabeth McKee Anderson

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Elaine J. Heron

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Richard A. Meier

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Maykin Ho

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David E.I. Pyott

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External Scientific Support

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Global Compliance and Ethics Program

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Achondroplasia: a comprehensive clinical review

Richard M. Pauli

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Lifetime impact of achondroplasia: Current evidence and perspectives on the natural history

Julie Hoover-Fong, Moira S. Cheung, Virginia Fano, Lars Hagenas, Jacqueline T. Hecht, Penny Ireland, Melita Irving, Klaus Mohnike, Amaka C. Offiah, Ericka Okenfuss, Keiichi Ozono, Cathleen Raggio, Louise Tofts, Dominique Kelly, Renée Shediac, Wayne Pan, Ravi Savarirayan

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Achondroplasia Natural History Study (CLARITY): a multicenter retrospective cohort study of achondroplasia in the United States

Julie E. Hoover-Fong, Adekemi Y. Alade, S. Shahrukh Hashmi, Jacqueline T. Hecht, Janet M. Legare, Mary Ellen Little, Chengxin Liu, John McGready, Peggy Modaff, Richard M. Pauli, David F. Rodriguez-Buritica, Kerry J. Schulze, Maria Elena Serna, Cory J. Smid, Michael B. Bober

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Growth in achondroplasia including stature, weight, weight-for-height and head circumference from CLARITY: achondroplasia natural history study—a multi-center retrospective cohort study of achondroplasia in the US

Julie E. Hoover-Fong, Kerry J. Schulze, Adekemi Y. Alade, Michael B. Bober, Ethan Gough, S. Shahrukh Hashmi, Jacqueline T. Hecht, Janet M. Legare, Mary Ellen Little, Peggy Modaff, Richard M. Pauli, David F. Rodriguez-Buritica, Maria E. Serna, Cory Smid, Chengxin Liu, and John McGready