Publication Data Request

Before submitting a request, please review our Data Sharing Request Policy.

Please note that Publication Data Requests are reviewed on a quarterly basis. Questions regarding the Publication Data Request process can be emailed to MedComm@bmrn.com.

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First Name*

Last Name*

Email Address*

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Date Requested*

Research Proposal Title

Please provide full research proposal title. This should be descriptive and should reflect the aim of the proposed research.

Purpose of Request

Please provide a brief, high-level, overview of the planned research, a clear summary of the background to this research, including a discussion of the questions/issues or knowledge gaps and, if applicable, any unmet medical need(s) or public health issues to be addressed by this research. Also provide succinct details of the objectives of the proposed research including any hypotheses being tested.

Do you plan to include additional data from other sources in this analysis and if so please provide a list of any external study data you will include in this research proposal?

Please provide list of any external study data that you wish to include in this research proposal. Also provide the source of these data, the associated sample sizes, and the interventions of interest that were studied. Please provide a plan for how you intend to combine or otherwise compare these external study data with the study data provided via this site.

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Submit a Publication Data Request

BioMarin can provide qualified scientific researchers access to de-identified patient-level data collected in clinical trials to improve patient care and help advance medical science.

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